Resources & News
(Medical Providers - see extra section below)
Videos & Podcasts:
Webinar 6/25/26 6:30pm: Through the Fog: Cognition & Systemic Mastocytosis
Free educational session organized by Cogent Biosciences and The Mast Cell Disease Society (TMS). Shawna (ISM patient) and myself will be discussing how mast cell disease can affect cognition, attention, and memory and practical tools to help manage this and support clearer thinking
The Gut Doctor Podcast, Neil D. Parikh, MD: “Mast Cell Diseases” with Erin Kolb, FNP (aired 10/24/23)
Mast Cell Care YouTube Channel (Some life circumstances caused me to stall here, but hoping to pick this up soon in the second half of 2026!)
Dr. Anne Maitland presenting “Mast Cell Activation Disorders” with the Immune Deficiency Foundation (posted 11/30/23)
Disclaimer:
The information provided on this website is for informational purposes only and is not intended to serve as medical advice or a substitute for professional medical consultation. Always consult your doctor or healthcare provider before starting any treatment or making changes to your care plan.
This website includes links to external websites on various topics, provided as a resource for visitors conducting personal research. However, information from these external pages should NEVER replace guidance from your doctor or healthcare team.
Mast Cell Care is not responsible for the content of any linked websites. The views and opinions expressed on those sites are solely those of their respective authors and do not necessarily reflect the views or positions of Mast Cell Care or its team members.
My Disclosures:
Consulting or Advisory Role: Blueprint Medicines
Speaking Engagements/Webinars: Cogent Biosciences
Research Funding: N/A
Informative Website Links:
SM Pathways - a site created for people living with systemic mastocytosis, sponsored by Cogent Biosciences
Masto Connect- a site created for those with systemic mastocytosis, sponsored by Blueprint
For Medical Providers:
Great open access articles!
Organizations to help interested providers learn more & gain expertise:
Mast Cell Disease TeleECHO Program with TMS
Earn free CME via this live virtual program with experts in MCD - AMAZING - Highly recommended! Consider signing up for the next session.American Initiatives in Mast Cell Disease (AIM)
Excellent multidisciplinary yearly conferences for providers who are passionate about mast cell disease!
Provider Sign Up:
Sign up to receive a free folder of Mast Cell Disease clinical practice resources from Erin that will help you be more efficient & confident in your day-to-day practice.
Lab codes for serum tryptase, urine mast cell metabolites, & highly sensitive serum dd PCR CKIT D816V. Referral form including pathology requests, how/why to test for HaT, & more.
Don’t worry, I won’t send many emails— BUT I’d love to connect with providers from various disciplines who have interest in learning more about the work-up, diagnosis & treatment of mast cell disorders!